Superior woman raising awareness on dysautonomia

Superior woman raising awareness on dysautonomia Photo: Tayler Haselow

Alejandra Palacios
Updated: October 29, 2020 05:35 PM

October is Dysautonomia Awareness Month. Dysautonomia affects the autonomic nervous system, which controls body functions like heart rate and blood pressure. A woman from Superior who was diagnosed last year shared the importance of bringing awareness to it.

23-year-old Tayler Haselow said it's crucial to raise awareness on dysautonomia after getting misdiagnosed several times.

"It's honestly amazing how many doctors I saw that didn’t know what it was," said Haselow.

She was diagnosed with a list of other things like anxiety and was getting frustrated because she was experiencing intense symptoms like dizziness.

"I was kind of at the end of my rope. I posted all the symptoms I had on Facebook and was like, I don't know what this is guys I need help," said Haselow.

Her friends told her to go to the doctor until she had the correct diagnosis. It ended up being dysautonomia, which is caused by damage to the nerves in the autonomic nervous system. It affects the signals between your brain and organs.

There's 15 different types of dysautonomia. One of them Haselow has is known as POTS. Haselow said it causes lightheadedness, abnormal heart rate, chest pains, and more.

"I cant really stand longer than 15 minutes without getting dizzy or losing my balance," said Haselow.

According to the non-profit Dysautonomia International, it affects over 70 million people worldwide. They said it takes patients years to get diagnosed due to lack of awareness.

"It's really isolating because when people can’t see your disability they kind of ignore them," said Haselow.

Haselow said there is no cure for it. She gets saline infusions every week that help with the side affects. She had to quit her job and spends majority of her time home.

"When you're disabled you’re stuck there's no end to that. I also just found out I have chiari malformation that my POTS actually stems from. I'm struggling. It's another wave of full on grief because I know now that this is never going away," said Haselow.

Throughout her journey, Haselow has used her social media platform and online clothing business to bring awareness to dysautonomia and hopes more and more people speak up on it and hopes others who feel the same as she did stay persistent and take the steps she did to get help.

"It sucks that we have to be our own advocate and do our own research to be listened to but keep pushing keep going because you have to listen to yourself," said Haselow.

Haselow is raising funds to buy a wheelchair she needs to be able to move around more. Click here to learn how you can donate and help.

Credits

Alejandra Palacios

Copyright 2020 WDIO-TV LLC, a Hubbard Broadcasting Company. All rights reserved

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