Baby Aria Waits for Heart Transplant at Mayo Clinic

September 09, 2015 10:24 PM

ROCHESTER, Minn. - A Wisconsin family has been waiting months at Mayo Clinic. A heart defect has left their one-year-old daughter with only one option, a heart transplant. The condition has the little girl dependent on machines and medical care, but her family is holding out hope for a miracle.


"I was so excited, I didn't believe it at first, until she was born,” said Tara Grams reminiscing about when she found out her two sons would have a baby sister. "Very rambunctious, like her two brothers… she's a princess, everything's pink."

Aria was born on May 20th, 2014. She was a healthy baby girl until just a few days after he first birthday.

"It was terrifying. She had been acting a little sick that week, having these episodes twice a day and then she'd be totally find in-between… I had talked to doctors and took her in and she went in a few times and they said it just seemed like a viral infection," said Tara. "It was May 29th. She was having one of those episodes. I was home with my boys. Josh was at work and she was grunting and had what seemed to be a seizure and then she went completely unresponsive."

Aria was rushed to Essentia Health in Duluth by ambulance. When things got worse, she was airlifted to get medical care in Minneapolis. She went through a stroke, blood transfusions, a lung infection, cardiac arrest and mini heart attacks. On June 7th, Aria went into heart failure. When things still did not get better, she was airlifted to Mayo Clinic where doctors diagnosed her with a rare heart defect.

"Aria has what's called cardiomyopathy and what that means is that there's a problem with the heart and how it squeezes and relaxes," said Dr. Nathan Taggart from Mayo Clinic.

She has now been at Mayo Clinic for 95 days, waiting for a heart transplant.

"If she doesn't get the organ, she will die. She's already been through three months of torture," said Tara.

"She's fighting, though, shes a fighter," said Aria’s Father Joshua Grams.

You can follow Aria's story on the Heart Warrior Princess Facebook page. There is also a Go Fund Me account set up.

To learn more about becoming an organ donor, click here.



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