Fighting ALS: Hermantown Man Committed to Finding a Cure

Updated: January 18, 2019 10:43 PM

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's Disease, is a devastating neurodegenerative disease with no known cure.

Advertisement – Content Continues Below

The ALS Association, MN/ND/SD Chapter, provides care services to affected families and spearheads research. For the last 20 years, the Black Woods Blizzard Tour has been a major fundraising event for the Association. “That’s the whole goal of why we do what we do, is to raise money to fight the battle that the patients are fighting,” Justin May said.

Justin has committed himself to the cause, and this year, he'll be taking his sled out for his 9th Blizzard Tour. In that time, Justin has single handedly raised thousands of dollars for the ALS Association. He said, "I've had too many close friends who have had it, and watched them battle through it, and it's a death sentence."

Justin continues to raise awareness and funds in hopes of providing support to families facing the same struggles he's seen with close friends. "It takes a toll on the whole family," he said, "things are going to start occurring very rapidly, and the caregivers need help immediately.”

There's also a sense of comradery that makes this annual event something Justin looks forward to all year. “The riders are a big family, and we get together once a year, and we go for a snowmobile ride,” he said. 

In each of the last two years, the Blizzard Tour has raised more than $1 million. For their 20th year, they're determined to reach that milestone again. "The goal for sure is a million dollars, and we're gonna get there," Justin said. He's commited to continue the fight until they reach the ultimate goal. "We're gonna try and raise more money every year until we can say that we've found a cure."

There has been an overwhelming response this year, and the ride is full. However, tickets are still available for the 20th Annual Black Woods Blizzard Tour Celebration Dinner for Saturday, February 2nd, at Cirrus Aircraft. The evening includes silent and live auctions, a raffle, an awards ceremony, dinner catered by Black Woods Grill and Bar, and entertainment from GB Leighton. Tickets are $35 per person. You can donate to help the fight here.

Copyright 2019 WDIO-TV LLC, a Hubbard Broadcasting Company. All rights reserved

Relay Media Amp

UPDATE: Missing Esko Teen Located Safe

Duluth B Company Marines Reunite to Honor 69th Anniversary of Call to Active Duty

Authorities: Driver Fails to Yield to Train, Leads to Collision

UMD Welcomes New Students to Campus for Move In Day

Two Tour Buses Crash near Minnesota State Fair, 8 Injured

Veteran Gets Recycled Ride at Arrowhead Auto Body