abc
QUICK LINKS:

Turner Syndrome Awareness Month

Updated: 01/28/2014 12:06 PM
Created: 01/28/2014 11:58 AM WDIO.com

Rebecca Nygaard is a 20-year-old college student making the best out of being young.  You wouldn't guess from meeting her that she's effected by a genetic abnormality effecting one in every 2,5000 female births, turner syndrome (T.S.). 

February is turner syndrome awareness month so Nygaard is sharing her story to spread the word and foster understanding.

T.S., as it's commonly known, is a random genetic abnormality in which girls are missing part or all of one of their X chromosomes.  Symptoms vary from patient and can be both physically apparent and internally damaging.

Short stature is a very common trait for girls and women with T.S.  It has a major effect on growth because one of the missing genes is one that tells puberty to kick in and is supposed to tell the body to grow.  T.S. also effects causes health issues ranging from hearing to heart problems. 

Nygaard says many girls growing up with T.S. feel like outcasts because of their physical differences and bullying can be a big problem.  That is why she's sharing her story, to help raise awareness and let others with T.S. Know they're not alone. 

Nygaard also wants to spread awareness because she says not very many people are aware of the syndrome.  She says many women aren't diagnosed until later in life. 

"I just met a 65 year old woman who was just diagnosed," Nygaard said.  "Can you believe that?"

That becomes an issue because early diagnosis is the best way to treat T.S. and help these young women grow.  "It's really important that we get girls diagnosed at a very young age so that they can begin the growth hormone treatments," Nygaard said.  "So that they can lead a normal life."

The Turner Syndrome Society of the United States is a great resources for women and girls facing T.S.  Nygaard says its also been a great support system for both she and her family.  For more about T.S. and for more resources CLICK HERE.

Front Page

  • General Mills Website Policy Could be 'Clicking' Your Rights Away

    Could clicking "like" on a company's Facebook page, entering their sweepstakes, or downloading their coupons cost you your right to take that company to court? Some consumer advocates are raising their eyebrows at the new website privacy policy for General Mills, saying it could do just that. 

  • 2 Hospitalized After Lincoln Park House Fire

    Two people are in the hospital after a house fire in Duluth's Lincoln Park neighborhood on Friday. Assistant Fire Chief Bryan Bushey said the damage is estimated at $30,000. There is no word on the conditions of the victims.

  • Aitkin Woman Dead in Wright Co. Crash

    An Aitkin woman is dead after a car crash near Minneapolis on Wednesday, according to the Minnesota State Patrol. 65-year-old Karen Tibbetts was driving an SUV that lost control on Highway 55 between Rockford and Buffalo.

  • Former Minn. Minister Accused of Abuse Reported in Spokane-area

    The Washington State Patrol says investigators have acted on 20 or 30 tips this week as they check locations in the Spokane-area in their search for a self-professed minister accused of sexually abusing at least two girls in rural Minnesota.

  • Smokehaus to Deliver Sandwiches, Meat by Bike

    The Northern Waters Smokehaus is looking to avoid traffic this summer by also going green. On May 5, they will begin delivering their sandwiches around downtown Duluth and down Park Point by bike.

 

Winter Weather Advisory

MN AREAS AFFECTED: Koochiching; North Itasca; South Itasca
Expires: 4/19/2014 10:00 AM

Winter Weather Advisory

MN AREAS AFFECTED: Carlton, South St. Louis; Central St. Louis; North St. Louis
Expires: 4/19/2014 12:00 PM

Winter Weather Advisory

MN AREAS AFFECTED: Northern Cook, Northern Lake; Southern Cook, North Shore; Southern Lake, North Shore
Expires: 4/19/2014 4:00 PM

Flood Warning

MN AREAS AFFECTED: Aitkin; Crow Wing
Expires: 4/24/2014 7:00 AM

Advertisement
Advertisement
Advertisement
Advertisement