Show of Strength Profile: Jesse and Braylon Krulich
Posted at: 09/10/2012 5:15 PM
| Updated at: 09/10/2012 5:17 PM
For 31-year-old Jesse Krulich, every day is a blessing. Jesse and his son Braylon both live with a form of Muscular Dystrophy known as Charcot–Marie–Tooth.
Charcot–Marie–Tooth is a genetic, neurological disorder that causes damage to the peripheral nerves.
"Basically it affects our nerve endings and our circulation and our lower half from the calf down. The feeling from my bones and muscles are weaker." Jesse Krulich says.
Every day jobs become more difficult. "Like doing buttons. The older I get the worse it gets. I can't dress Braylon and do his buttons and zippers."
Braylon is a very energetic two and half year old. He loves music. He loves to cook with his dad. "He loves everything."
"It's very difficult to see your son running and playing and you basically don't know if it's going to be worse then I have." Krulich said of his son.
Braylon was also diagnosed with stage 3 liver cancer, but thankfully now is in remission. His father says they make most of their time together.
"You basically want to change your life change. Treating your life is like there is no tomorrow. We almost lost him and we want to spend as much time with him as we can. We don't know what the future holds."
Having Muscular Dystrophy has made Jesse Krulich strong, both for himself and for his son.
"I was supposed to be in a wheel chair from the age of 9 or ten they said your not going to be able to walk your not going to be able to do it. Now that I'm 31 I beat it. I get stronger everyday. And ever since he was born he has had cancer and muscular dystrophy. It's made me drive more... It's made me a better father."